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Warm up questionWhere have you learned about health information in 2020? Try to think of everywhere (from people, from websites, from agencies, from social media, etc.)

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Слайд 1Advance/Access
Joe Crescente
Media Literacy Fellow
20 October 2020

Advance/AccessJoe CrescenteMedia Literacy Fellow20 October 2020

Слайд 2Warm up question
Where have you learned about health information in

2020?
Try to think of everywhere (from people, from websites,

from agencies, from social media, etc.)


Warm up questionWhere have you learned about health information in 2020? Try to think of everywhere (from

Слайд 3Second warm-up question
Have you ever used any wellness products or

have you known someone that has?

Second warm-up questionHave you ever used any wellness products or have you known someone that has?

Слайд 4Today’s topics
Medical “influencers”
Rumor managers

Today’s topicsMedical “influencers”Rumor managers

Слайд 5What do you think the term “medical influencer” means?

What do you think the term “medical influencer” means?

Слайд 6Earlier this year
a well-known doctor named Dominique Fradin-Read told thousands

of viewers tuning into an Instagram Live video that she

had an answer: "one of the best ways to prevent and fight COVID-19."
Earlier this yeara well-known doctor named Dominique Fradin-Read told thousands of viewers tuning into an Instagram Live

Слайд 7Dr. Dominique Read, founder of @vitalifemd and Gucci Westman, @gucciwestman,

founder of @westmanatelier go live to discuss immunity-boosting tips for

#quarantine!⁣⁣
Dr. Dominique Read, founder of @vitalifemd and Gucci Westman, @gucciwestman, founder of @westmanatelier go live to discuss

Слайд 8Dr. Fradin-Read is a prominent figure in the wellness community
She

owns the medical practice VitaLifeMD in Los Angeles and has

helped formulate supplements for actor Gwyneth Paltrow's brand
Dr. Fradin-Read is a prominent figure in the wellness communityShe owns the medical practice VitaLifeMD in Los

Слайд 9This time, on Instagram, Fradin-Read was promoting more than just

"wellness"
In the face of a deadly pandemic, she claimed

to have an "FDA-approved" medicine that worked like "magic." Fradin-Read made similar claims on her practice's social media accounts. If patients followed her advice, including getting regular injections of this drug, she said, "maybe the virus will not be that hard to fight.”
This time, on Instagram, Fradin-Read was promoting more than just

Слайд 10April 19, 2020

April 19, 2020

Слайд 11Such claims were, at best, misleading.
At worst, the recommendations

could put patients' health at risk. The drug has never

been approved by the FDA for any condition, nor has it been proven safe or effective for treating COVID-19. The company has also been accused of alleged violations of lab safety standards.
Such claims were, at best, misleading. At worst, the recommendations could put patients' health at risk. The

Слайд 12An NPR investigation
found that Fradin-Read is one of more than

30 medical practices that have made unproven claims about this

drug on their websites and on social media. It remains unclear how many Americans may have taken the drug since the pandemic began, though one doctor said she had prescribed it to more than 100 patients.
An NPR investigationfound that Fradin-Read is one of more than 30 medical practices that have made unproven

Слайд 13What do you think of this statement?
Fradin-Read defended her practice's

prescriptions of thymosin alpha-1 and said she believed the drug

was safe and effective


What do you think of this statement?Fradin-Read defended her practice's prescriptions of thymosin alpha-1 and said she

Слайд 14NPR's investigation revealed how these misleading claims proliferate

NPR's investigation revealed how these misleading claims proliferate

Слайд 15Three elements are necessary:
Laboratories manufacture, promote and supply the drug
Doctors

market the drug and prescribe it to patients
Government agencies with

responsibility for regulating drugs and misleading advertising fail to deter many offenders amid a flood of coronavirus-related scams
Three elements are necessary:Laboratories manufacture, promote and supply the drugDoctors market the drug and prescribe it to

Слайд 16Unclear if the doctors promoting these drugs were aware of

these problems
However, they received their message: During the pandemic, the

CEO said, "If [patients] can only afford one product, this would be the one for both prophylaxis and treatment.”
Most of the medical practices that promoted the drug are not specialized in infectious diseases but rather focus on plastic surgery or promote "wellness," "anti-aging" and "regenerative" medicine
Unclear if the doctors promoting these drugs were aware of these problemsHowever, they received their message: During

Слайд 17Questions:
What is it about a pandemic that makes people vulnerable

to misinformation?

Questions:What is it about a pandemic that makes people vulnerable to misinformation?

Слайд 18What do you think of this statement?
In an interview with

NPR, Lindgren said she began prescribing thymosin alpha-1 early on

in the pandemic "to give people something that they can do [so] that they felt like they weren't helpless." And because she viewed the drug as so safe, she said, that "it was better than doing nothing, in my opinion."
What do you think of this statement?In an interview with NPR, Lindgren said she began prescribing thymosin

Слайд 19Ultimately NPR found
For the companies involved it was worth the

risk – the regulatory agency was overwhelmed

Ultimately NPR foundFor the companies involved it was worth the risk – the regulatory agency was overwhelmed

Слайд 20NPR investigation can be found here
https://www.npr.org/2020/10/01/914433778/web-of-wellness-doctors-promote-injections-of-unproven-coronavirus-treatment

NPR investigation can be found herehttps://www.npr.org/2020/10/01/914433778/web-of-wellness-doctors-promote-injections-of-unproven-coronavirus-treatment

Слайд 21Rumor manager
What do you think this is? How would you

make a job description for such a position?

Rumor managerWhat do you think this is? How would you make a job description for such a

Слайд 22Dr. Heidi Larson is something of a rumor manager
Her main

job is to to build trust among the public in

vaccines mostly through the media
In effect she hunts viral rumors about real viruses


Dr. Heidi Larson is something of a rumor managerHer main job is to to build trust among

Слайд 23Dr. Larson
is obsessed with the origin and evolution of rumors,

which she calls “collective problem solving”
has come to see most

anti-vaxxers — a term she considers too oppositional — not as uneducated, science-denying individualists but as people with genuine questions and doubts in search of guidance
“This is a public cry to say, ‘Is anyone listening?’”
Dr. Larsonis obsessed with the origin and evolution of rumors, which she calls “collective problem solving”has come

Слайд 24Dr. Larson
“I saw how much of the communication strategies were

very much driven by what the public health community and

immunization people thought the public needed to know. But they weren’t responding to what people’s concerns were, or issues, or questions.”
Dr. Larson“I saw how much of the communication strategies were very much driven by what the public

Слайд 25Dr. Larson founded The Vaccine Confidence Project in 2010
It monitors

news, social-media and community conversations in nearly every country and

63 languages to learn of rumors that might undermine acceptance of critical vaccines
Dr. Larson founded The Vaccine Confidence Project in 2010It monitors news, social-media and community conversations in nearly

Слайд 26According to Pew Research
the share of adult Americans who say

they would “definitely” or “probably” get a Covid-19 vaccine fell

from 72 percent in May to 51 percent in September
According to Pew Researchthe share of adult Americans who say they would “definitely” or “probably” get a

Слайд 27According to this project
influential groups can have an enormous impact

very quickly
the viral spread of misinformation on the internet plays

a key role
people can change their minds very quickly

According to this projectinfluential groups can have an enormous impact very quicklythe viral spread of misinformation on

Слайд 283,000 people in Britain were asked: If a Covid-19 vaccine

existed, would you definitely take it?
54 percent said yes.

Then most were shown a series of negative social media posts, including a post from an English conspiracy theorist, claiming that a Big Pharma whistle-blower had said that “97 percent of corona vaccine recipients will become infertile.” After exposure, the percentage of the study’s respondents who expressed a willingness to take a vaccine dropped more than 6 percentage points.
3,000 people in Britain were asked: If a Covid-19 vaccine existed, would you definitely take it? 54

Слайд 29It might not sound like a lot
But 6% enough to

endanger a goal

It might not sound like a lotBut 6% enough to endanger a goal

Слайд 30Dr. Larson has learned that focusing
on the inaccuracy of any

given rumor is to miss the point
She was asked, Shouldn’t

people target social media companies and press them to take down the anti-vaccine posts?
Dr. Larson has learned that focusingon the inaccuracy of any given rumor is to miss the pointShe

Слайд 31Discuss what you think of these statements:
Dr. Larson says,
“I don’t

think taking (misinformation) down is going to get rid of

the sentiment. If you shut down Facebook tomorrow, it’s not going to make this go away. It’ll just move.”
“We don’t have a misinformation problem. We have a trust problem.”
Discuss what you think of these statements:Dr. Larson says,“I don’t think taking (misinformation) down is going to

Слайд 32Closing questions
How do you react when you have a problem

and someone doesn’t address your concerns?

What is something you can

do the next time you see someone spreading information that could be false?
Closing questionsHow do you react when you have a problem and someone doesn’t address your concerns?What is

Слайд 33You can read more about Dr. Larson here:
https://www.nytimes.com/2020/10/13/health/coronavirus-vaccine-hesitancy-larson.html

You can read more about Dr. Larson here:https://www.nytimes.com/2020/10/13/health/coronavirus-vaccine-hesitancy-larson.html

Слайд 34Thank you for your attention!
Any questions?

Thank you for your attention!		Any questions?

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