Слайд 1Advance/Access
Joe Crescente
Media Literacy Fellow
20 October 2020
Слайд 2Warm up question
Where have you learned about health information in
2020?
Try to think of everywhere (from people, from websites,
from agencies, from social media, etc.)
Слайд 3Second warm-up question
Have you ever used any wellness products or
have you known someone that has?
Слайд 4Today’s topics
Medical “influencers”
Rumor managers
Слайд 5What do you think the term “medical influencer” means?
Слайд 6Earlier this year
a well-known doctor named Dominique Fradin-Read told thousands
of viewers tuning into an Instagram Live video that she
had an answer: "one of the best ways to prevent and fight COVID-19."
Слайд 7Dr. Dominique Read, founder of @vitalifemd and Gucci Westman, @gucciwestman,
founder of @westmanatelier go live to discuss immunity-boosting tips for
#quarantine!
Слайд 8Dr. Fradin-Read is a prominent figure in the wellness community
She
owns the medical practice VitaLifeMD in Los Angeles and has
helped formulate supplements for actor Gwyneth Paltrow's brand
Слайд 9This time, on Instagram, Fradin-Read was promoting more than just
"wellness"
In the face of a deadly pandemic, she claimed
to have an "FDA-approved" medicine that worked like "magic." Fradin-Read made similar claims on her practice's social media accounts. If patients followed her advice, including getting regular injections of this drug, she said, "maybe the virus will not be that hard to fight.”
Слайд 11Such claims were, at best, misleading.
At worst, the recommendations
could put patients' health at risk. The drug has never
been approved by the FDA for any condition, nor has it been proven safe or effective for treating COVID-19. The company has also been accused of alleged violations of lab safety standards.
Слайд 12An NPR investigation
found that Fradin-Read is one of more than
30 medical practices that have made unproven claims about this
drug on their websites and on social media. It remains unclear how many Americans may have taken the drug since the pandemic began, though one doctor said she had prescribed it to more than 100 patients.
Слайд 13What do you think of this statement?
Fradin-Read defended her practice's
prescriptions of thymosin alpha-1 and said she believed the drug
was safe and effective
Слайд 14NPR's investigation revealed how these misleading claims proliferate
Слайд 15Three elements are necessary:
Laboratories manufacture, promote and supply the drug
Doctors
market the drug and prescribe it to patients
Government agencies with
responsibility for regulating drugs and misleading advertising fail to deter many offenders amid a flood of coronavirus-related scams
Слайд 16Unclear if the doctors promoting these drugs were aware of
these problems
However, they received their message: During the pandemic, the
CEO said, "If [patients] can only afford one product, this would be the one for both prophylaxis and treatment.”
Most of the medical practices that promoted the drug are not specialized in infectious diseases but rather focus on plastic surgery or promote "wellness," "anti-aging" and "regenerative" medicine
Слайд 17Questions:
What is it about a pandemic that makes people vulnerable
to misinformation?
Слайд 18What do you think of this statement?
In an interview with
NPR, Lindgren said she began prescribing thymosin alpha-1 early on
in the pandemic "to give people something that they can do [so] that they felt like they weren't helpless." And because she viewed the drug as so safe, she said, that "it was better than doing nothing, in my opinion."
Слайд 19Ultimately NPR found
For the companies involved it was worth the
risk – the regulatory agency was overwhelmed
Слайд 20NPR investigation can be found here
https://www.npr.org/2020/10/01/914433778/web-of-wellness-doctors-promote-injections-of-unproven-coronavirus-treatment
Слайд 21Rumor manager
What do you think this is? How would you
make a job description for such a position?
Слайд 22Dr. Heidi Larson is something of a rumor manager
Her main
job is to to build trust among the public in
vaccines mostly through the media
In effect she hunts viral rumors about real viruses
Слайд 23Dr. Larson
is obsessed with the origin and evolution of rumors,
which she calls “collective problem solving”
has come to see most
anti-vaxxers — a term she considers too oppositional — not as uneducated, science-denying individualists but as people with genuine questions and doubts in search of guidance
“This is a public cry to say, ‘Is anyone listening?’”
Слайд 24Dr. Larson
“I saw how much of the communication strategies were
very much driven by what the public health community and
immunization people thought the public needed to know. But they weren’t responding to what people’s concerns were, or issues, or questions.”
Слайд 25Dr. Larson founded The Vaccine Confidence Project in 2010
It monitors
news, social-media and community conversations in nearly every country and
63 languages to learn of rumors that might undermine acceptance of critical vaccines
Слайд 26According to Pew Research
the share of adult Americans who say
they would “definitely” or “probably” get a Covid-19 vaccine fell
from 72 percent in May to 51 percent in September
Слайд 27According to this project
influential groups can have an enormous impact
very quickly
the viral spread of misinformation on the internet plays
a key role
people can change their minds very quickly
Слайд 283,000 people in Britain were asked: If a Covid-19 vaccine
existed, would you definitely take it?
54 percent said yes.
Then most were shown a series of negative social media posts, including a post from an English conspiracy theorist, claiming that a Big Pharma whistle-blower had said that “97 percent of corona vaccine recipients will become infertile.” After exposure, the percentage of the study’s respondents who expressed a willingness to take a vaccine dropped more than 6 percentage points.
Слайд 29It might not sound like a lot
But 6% enough to
endanger a goal
Слайд 30Dr. Larson has learned that focusing
on the inaccuracy of any
given rumor is to miss the point
She was asked, Shouldn’t
people target social media companies and press them to take down the anti-vaccine posts?
Слайд 31Discuss what you think of these statements:
Dr. Larson says,
“I don’t
think taking (misinformation) down is going to get rid of
the sentiment. If you shut down Facebook tomorrow, it’s not going to make this go away. It’ll just move.”
“We don’t have a misinformation problem. We have a trust problem.”
Слайд 32Closing questions
How do you react when you have a problem
and someone doesn’t address your concerns?
What is something you can
do the next time you see someone spreading information that could be false?
Слайд 33You can read more about Dr. Larson here:
https://www.nytimes.com/2020/10/13/health/coronavirus-vaccine-hesitancy-larson.html
Слайд 34Thank you for your attention!
Any questions?